Speakers

Sharie Fetzer, Chairperson, Chair , Lipoedema UK

Sharie has been Chair of Lipoedema UK since 2014. She initiated the first patient survey in 2012 and co-authored Lipoedema UK’s Big Survey Research Report which has been instrumental in creating an impetus for better awareness of Lipoedema and referenced in numerous worldwide research projects. Lipoedema UK continue to play an important role in providing a voice for women with Lipoedema who have consistently been let down by conventional wisdom on weight management and the lack of knowledge of lipoedema throughout the medical profession.

Sharie, along with Mary Warrilow, Lipoedema UK Nurse Consultant and Dr Yannan (Jessica) Jin BSc (Hons) Ph.D FHEA RNutr (Nutrition Science), Senior Lecturer in Nutrition De Montfort University, is committed to a long term study on the effects of Diet and Lifestyle on Lipoedema. Sharie also co-authored ‘Women in dire need denied surgery and treatments: Compression Garments and Liposuction to Manage Lipoedema’ and is currently involved in Lipoedema UK’s latest survey ‘Living with Lipoedema - Liposuction and other treatments’ and the NICE review into Non-cosmetic liposuction in managing Lipoedema guidance’

Rucha Kurtkoti, Editor, British Journal of Community Nursing

Rucha holds a master’s degree in microbiology and has worked in the academic publishing industry for almost 15 years now. Before joining the Mark Allen Group as the editor of the British Journal of Community Nursing at the end of November 2018, she ran a small editing business of her own from home, where she would help non-native research writers have their work published in top-tier journals. Rucha has also worked at various research laboratories in the past, including a virology institute and a molecular biology lab.

Sue Lawrance, Clinical Nurse Specialist Lymphoedema, Buckinghamshire Healthcare / Haddenham Healthcare

Sue started her training at the Oxford School of Nursing in 1980.

After qualifying she remained in Oxford working as a Staff Nurse within the general surgery & vascular department before moving to North London to take up a District Nursing role.

With a background in vascular surgery & District nursing, chronic oedema & lymphology have been the focus of Sue’s nursing career for the past 35 years. As a District nurse, Sue was involved in developing a community leg ulcer clinic & following the 1991 QNI Award for Innovative Practice,  a community based lymphoedema service.

Since 1997 Sue has developed and managed the Lymphoedema service for Mid & North Bucks based at Florence Nightingale Hospice, Aylesbury. The service is nurse led & treats Primary & Secondary Lymphoedema along with an increasing caseload of chronic oedemas, primarily on an outpatient clinic basis, but with input into the acute sector, Hospice inpatient unit and community.

Sue is also part of a team of clinical trainers for Haddenham Healthcare, delivering education & training to healthcare professionals involved with chronic oedema /lymphoedema management.

Garry Cooper-Stanton, Clinical Nurse Specialist and Assistant Professor, University of Birmingham and Walsall Healthcare NHS Trust

Garry Cooper-Stanton works as a clinical nurse specialist in lymphoedema and within academia at the University of Birmingham (UoB). In recognition of his work within the community he was awarded the title of Queens Nurse from the QNI. He is currently undertaking his Doctoral Research (UoB) focusing upon men and their experiences of lymphoedema. This builds on his previous research regarding the prevalence of lymphoedema in the West Midlands and South West. He has also worked as an occupational health nurse, community nurse and been a committee member of the British Lymphology Society.

Cheryl Pike, National Macmillan Innovations Lymphoedema Specialist, Swansea Bay University Health Board

Cheryl Pike trained as a physiotherapist at the University of Pretoria, South Africa.  In 1999, Cheryl came to the UK to expand her knowledge and skillset in rehabilitation therapy. As part of a service development role in palliative care, Cheryl realised her basic training for lymphoedema was insufficient for patients, and this set her on her path to become a lymphoedema therapist.  She trained under Catherine Groom and Dr Melanie Thomas in 2004, and later became a qualified MLD teacher herself in 2016.  Cheryl has presented at national and international conferences, and has recently completed a Doctorate in Professional Practice, looking at the use of 3D technology in assessing people with upper limb lymphoedema.

Professor Nick Watkin, Professor of Urology, St George’s Hospital London

Nick Watkin is Professor of Urology and Consultant Urological surgeon at St George’s University of London and St George’s Hospital London. He specialises in reconstructive urology for both malignant and benign disease and leads the urological cancer team twice awarded National Cancer Team of the Year. They were awarded European Reference Centre status in 2017. The genital lymphoedema service was set up in 2003 as a multi-disciplinary team to manage both congenital and acquired conditions and see 20-25 new patients per year.

Nick has published over 130 peer-reviewed papers and more than 260 presentations at International Urology meetings. He was awarded the Golden Cystoscope for outstanding contribution to British Urology in 2010 and is the Academic Training Program Director for the London School of Surgery and Chair of the Specialist Urology Training Committee.

Rachel Day, Macmillan Specialist Lymphoedema Practitioner, The Royal Marsden NHS Foundation Trust

Rachel qualified as a physiotherapist in 2004. She joined the lymphoedema service at The Royal Marsden Hospital in 2008 and has worked as a lymphoedema therapist since.

Katie Riches, Vice Chair, BLS

Katie is a research nurse working with Vaughan Keeley and the team in Derby. She is currently undertaking a PhD designed to improve the assessment of breast lymphoedema. She is involved in a range of research studies which focus on the assessment and early intervention of arm lymphoedema following breast cancer treatment, genetic studies designed to identify genes relating to primary lymphoedema and lipoedema and an RCT comparing different treatment doses of IPC. Her other research interests include quality of life and the measurement of oedema.

Jeanne Everett, Lymphoedema Specialist Nurse, St Teresa’s Hospice, Darlington

Jeanne started her lymphoedema career in the early 1990s, setting up the lymphoedema clinic in Durham. She then moved into a specialist clinical role across South Durham, Teesside and North Yorkshire, and in 2013 set up the Lymphoedema Service based in Imperial Healthcare Trust at Charing Cross Hospital. Having been the Lymphoedema Clinical Lead at Teesside Hospice for some years, Jeanne has now “downsized” to become part time Lymphoedema Nurse at St Teresa’s Hospice in Darlington, leaving herself more time to pursue her passion for education. Jeanne currently runs several lymphoedema courses: a rolling program of study sessions for non-specialists, and Clinical and Specialist Skills courses, the latter including training in Casley Smith MLD.

Karen Morgan, National Lymphoedema Education Lead in Wales , Lymphoedema Network Wales NHS in Wales (SBUHB)

Karen Morgan is a registered nurse by background. She was appointed the National Lymphoedema Education lead in Wales in 2012 and is Deputy to Dr Melanie Thomas National Clinical Lead and Associate Director for Lymphoedema in Wales. She has been pivotal in developing and delivering accredited lymphoedema education in Wales utilising Agored work based credits. In 2016 led the on the ground clinical educators project funded by the Welsh Government Health Technology and Innovation Fund. Developing jointly The Chronic Oedema “Wet Leg Pathway” as an output. Awarded the British Journal of Nursing Chronic Oedema Nurse of the Year for this work in 2018. Supporting the ongoing implementation of the On the Ground clinical lymphoedema educators throughout Wales.