08.30 – 09.15 Registration, refreshments and exhibition viewing
CHAIR: Sharie Fetzer
Chair, Lipoedema UK
09.15 – 09.20 Welcome and introduction by Chair
09.20 – 10.00 Genital lymphoedema
Presenter: Jane Wigg
For both males and females, genital oedema can have a catastrophic effect on quality of life. This session will discuss the causes, early signs and treatment of genital lymphoedema, demonstrating the use of indocyanine green imaging in improving our knowledge and understanding. It will also revisit treatment possibilities, with impact from real stories, helping you to take steps towards improving the lives of those living with this condition.
10:00 – 10.40 The importance of Skin care and the management of Lymphorrhoea
Presenter: Kris Jones
10.40 – 11.10 Refreshments and exhibition viewing
11.10 – 11.40 New technique for management of ano-genital lymphoedema following ano-genital granulomatosis
Presenter: Kerri Cooper
Ano-genital granulomatosis is a rare chronic condition of the skin that causes lymphoedema of the external genitalia. Mechanisms of disease and optimal methods of treatment are poorly understood. This presentation provides an insight of a new technique for management derived directly from the speaker’s practice, drawing from clinical experience and real-world patient examples.
11.40 - 12.10 Haddenham Comfiwave: Uses and versatility in clinical practice
Presenter: Natalie Phillips
Comfiwave is a patented compression garment, designed to complement the treatment a patient receives during waking hours. Easy donning and doffing gives Comfiwave an innovative versatility, providing both night-time compression and a comfortable solution for the daytime. Presenter Jeanenne Everett explores its benefits and applications.
12.10 – 12.40 Lipoedema and Mental Health
Presenter: Harriet Berry
12:40 – 13:30 Lunch and exhibition viewing
13.30 - 14.00 Exploring resource and cost saving opportunities when prescribing compression garments
Session Speaker: Natalie Phillips
This session will highlight the cost and resource savings that can be achieved when using sized flat knit compression garments instead of custom-made garments in the management of lymphoedema. During the session we will detail the differences in the sized range of flat knit compression products and the indications for using them in clinical practice.
14:00 – 14:30 TBC
14:30 - 15:05 Pain and discomfort
Presenter: Rachel Day
Lymphoedema is not uncommon among women who have undergone treatments for breast cancer, as chemotherapy, surgical removal of lymph nodes, and/or radiation treatments can all affect the health of the lymphatic system. Pain and discomfort can be an ongoing issue for this group of patients, and requires careful management from both patients and healthcare professionals. This presentation offers lessons from the speakers’ daily practice on assisting patients and improving their health-related quality of life.
15.05 – 15.35 Refreshments and exhibition viewing
15:35 – 16:10 Deep vein thrombosis
Presenter: Rebecca Elwell
There is some confusion surrounding the management of people with lymphoedema in the presence of deep vein thrombosis (DVT). This may be in relation to the suitability of commencing compression therapy or regarding the continuation of compression therapy in those who develop DVT. The purpose of the position paper is to support evidence-based practice and debunk myths surrounding the management of DVT and lymphoedema. It is recognised that patients with pre-existing lymphoedema can develop DVTs and also that patients who get DVTs are very likely to develop chronic oedema/lymphoedema as part of post-thrombotic syndrome.
16:10 – 16:35 A Pandemic and the Implications on a Lymphoedema Service
Presenter: Louise Rooney
COVID has definitely been a challenge to all of us that has required adaptions to all our individual roles. Implementing new ways of working during this pandemic as a service has been a challenge. We are not an emergency service but an essential one for our patients and this has been so highlighted during this period when GP services have been so restricted.
During service closures there has been time to reflect and evaluate our case load, what we do in practice, empowering patients’ to take more ownership and self-manage long condition.
16.35 Close of conference