Sharie initiated Lipoedema UK’s 2012 patient survey which uncovered that only 5% of lipoedema patients had been diagnosed by GPs. The findings of the survey led to her involvement in the RCGP’s e-learning course on lipoedema and Wounds UK Best Practice Guidelines for the Management of LIpoedema. Sharie was an advisor to the BBC1 News team’s feature on lipoedema and is a member of the European Lipoedema Forum. In 2020 Lipoedema UK will be working on new research projects, continue raising awareness at Healthcare Professional events and launch a training programme for LIpoedema UK Ambassadors.
